{"id":67630,"date":"2023-01-02T13:41:36","date_gmt":"2023-01-02T20:41:36","guid":{"rendered":"https:\/\/www.uchealth.org\/today\/?p=67630"},"modified":"2023-01-05T10:48:26","modified_gmt":"2023-01-05T17:48:26","slug":"optune-device-positive-outlook-let-brain-cancer-patient-live-life","status":"publish","type":"post","link":"https:\/\/www.uchealth.org\/today\/optune-device-positive-outlook-let-brain-cancer-patient-live-life\/","title":{"rendered":"Optune device, positive outlook let glioblastoma patient live his life"},"content":{"rendered":"
<\/div>
\"Kelly
Bruce and Kelly Stahlman have faced more than their share of difficult times, losing twin sons when the boys were in their early 20s and then absorbing the shock of Bruce\u2019s glioblastoma diagnosis. While treatments and the Optune device have been pivotal in his brain cancer battle, they believe that maintaining a positive attitude has made a big difference. Photos by Cyrus McCrimmon for UCHealth.<\/figcaption><\/figure>\n

Bruce Stahlman and wife Kelly had rightly hoped that their decades-long immersion in the U.S. health care system might end with the lives of their twin sons in 2014 and 2015. Mark and Eric had been born 12 weeks premature in 1992, and long neonatal intensive care unit stays presaged two decades of frequent hospitalizations. Their severe cerebral palsy and accompanying health problems had led to the remodeling of the Stahlmans\u2019 Littleton home a sort of hospital unto itself<\/a>, complete with lifts and nursing care.<\/p>\n

It was not to be. In August 2018, Bruce, then 61, found himself nodding off at dinners and occasionally losing his balance despite him being a runner and capable of knocking out high-intensity Orange Theory workouts.<\/p>\n

Kelly\u2019s instincts, honed over more than 20 years of caring for their boys, told her something was off. She talked to the neurologist who had long worked with her twins and then scheduled an office visit and an MRI for her husband. Bruce obliged but drove in his own car to the MRI appointment so he could head straight to his job as chief financial officer for ARC Thrift Stores<\/a> afterward.<\/p>\n

He headed to an intensive care unit instead.<\/p>\n

The scan revealed a brain tumor the size of a racquetball. The pathology report after its successful surgical removal showed it to be glioblastoma multiforme (GBM). It\u2019s a killer tumor, one that accounts for about half of all brain tumors<\/a>. Each year, about 13,000 people in the United States are diagnosed<\/a> with one and about 10,000 people die of one. The average patient survives about 15 months even with the surgery and the follow-up radiation therapy and chemotherapy regimens Bruce subsequently went through. The average five-year survival rate is 6.8%.<\/p>\n

Optune device for brain cancer<\/strong><\/h2>\n

Kelly drove home to take care of a few things after the scan. She had buried two of her three sons \u2013 Jay, her oldest, was arranging to fly in to help out. Now her husband had brain cancer. She realized: \u201cI\u2019ve been here before. You can either go through the trauma of trying to understand something that\u2019s not understandable or say to yourself, \u2018OK, it is what it is \u2013 now what?\u2019\u201d<\/p>\n

For Bruce, the answer to \u201cNow what?\u201d was a decision to live. That, too, was at least in part a response informed by his experiences with his twin sons. Dottie Mann, a friend of the Stahlmans who is a chaplain at UCHealth Highlands Ranch Hospital<\/a>, had once told them that end-of-life was not about how you die. It\u2019s about how you want to live until you don\u2019t.<\/p>\n

Fifty-two months later, Bruce is still living. He and Kelly credit two big reasons. One is the Novocure Optune device he wears an average of about 21 hours a day. The other has to do with both the head and the heart, and that\u2019s deliberately maintaining a positive outlook whatever the circumstances.<\/p>\n

Bruce put it this way: \u201cYou can\u2019t stop the waves, but you can learn to surf.\u201d<\/p>\n

\"Bruce
Bruce Stahlman with wife Kelly and dog Rambo. The Optune device Bruce wears the vast majority of the time has kept his brain cancer in check for more than four years. Photos by Cyrus McCrimmon for UCHealth.<\/figcaption><\/figure>\n

Some of the waves Bruce now surfs are electric. The Optune device delivers low-intensity, 200-kilohertz, alternating electric fields into Bruce\u2019s brain via 27 electrodes stuck about his head. The electrodes get moved every two days to prevent the irritation of a scalp Bruce now keeps clean-shaven.<\/p>\n

\u201cI\u2019ve had to take off my Fabio locks \u2013 which is brutal \u2013 but unfortunately, it needs to happen,\u201d Bruce said. On the bright side, shortly after returning to the office with a clean-shaven noggin, he said, \u201cmy teammates took my nameplate off the door and put \u2018Vin Diesel\u2019 on it.\u201d<\/p>\n

A cable bundles the electrode wires behind his head and snakes them to a battery and controller he wears as shoulder bag.<\/p>\n

Optune device proven to slow brain tumor growth<\/strong><\/h2>\n

The system has been proven<\/a> to slow the growth of GBM tumors, explained Dr. Douglas Ney<\/a>, the University of Colorado School of Medicine neuro-oncologist who prescribed Bruce the Optune and continues to lead his cancer care.<\/p>\n

\u201cThe alternating electrical fields, which penetrate into the brain, largely affect only the rapidly dividing cells, which are going to be the glioblastoma cells,\u201d Ney said. \u201cThey disrupt the cells\u2019 ability to go through mitosis, which is the way cancer cells divide.\u201d<\/p>\n

Ney and his CU Neurology colleagues have been working with the Optune device since before the U.S. Food and Drug Administration approved it in 2011, Ney says. The CU team participated in the clinical trials at UCHealth University of Colorado Hospital<\/a> on the Anschutz Medical Campus<\/a> (UCH) that led to the Optune\u2019s approval. Ney estimates that hundreds of UCHealth patients have subsequently used the device, with an average prognosis of about 21 months.<\/p>\n

Bruce has more than doubled that, making him, as Ney put it, \u201can outlier.\u201d The reason may be biological \u2013 Bruce\u2019s GBM could simply be more vulnerable to the Optune\u2019s electrical insults than the tumors of many patients. But some of it is probably psychological, Ney says.<\/p>\n

\u201cI think the wonderful attitude and approach to this diagnosis that they have has really gone a long way in how well he\u2019s doing,\u201d he said. \u201cI think, because of their history, they have a really deepened approach to addressing adversity and life circumstances that can really bring you down. That plays into this as well.\u201d<\/p>\n

As Optune device wearer, Bruce is paying it forward<\/strong><\/h2>\n

\u201cThey,\u201d in this case, are Bruce and Kelly, whose affinity for one another is hard to miss. Often, it manifests through a shared sense of humor. Example: When describing Optune\u2019s side effects (negligible), Bruce added, \u201cOf course, I can now read everyone\u2019s thoughts.\u201d<\/p>\n

\"Stahlman
Stahlman with the Optune device. It works by using electrical fields to interfere with cancer-cell division.<\/figcaption><\/figure>\n

\u201cEveryone\u2019s except his wife\u2019s,\u201d Kelly qualified without missing a beat.<\/p>\n

\u201cI can read yours, too, but I just don\u2019t want to let on,\u201d Bruce said.<\/p>\n

There\u2019s more to Bruce\u2019s relative longevity than the Optune and the positive attitude, of course. He also lists faith, science, nutrition, exercise, a doctor you trust, and friends and family. On the family front, son Jay and his wife Tsvetelina have moved back to metro Denver with sons Max, 4, and Theo, 6. On the exercise front, he\u2019s back to running (for this he removes the Optune) and did a 10K in Littleton in late October and a 5K turkey trot in California over the Thanksgiving holiday.<\/p>\n

Bruce continues to work his day job at ARC Thrift Stores. He and Kelly, longtime healthcare and disability-services advocates, have added cancer-related advocacy to a volunteering portfolio. Bruce gives public talks, and he and Kelly are active in the monthly UCHealth Brain Tumor Support Group<\/a>. They\u2019re also working with Novocure\u2019s public affairs staff to speed up the approval and Medicare coverage for Optune-like devices suited to ovarian, pancreatic, and non-small cell lung cancer.<\/p>\n

\"Rambo
Rambo takes advantage of his central positioning to share the love.<\/figcaption><\/figure>\n

\u201cFirst and always, it\u2019s about gratitude,\u201d Bruce said. \u201cIt\u2019s all about how we pay forward all the support and help that we got through our journey, certainly with my diagnosis, but also with Mark and Eric.\u201d<\/p>\n

They are grateful for the care they\u2019ve received at UCH.<\/p>\n

\u201cWe chose Anschutz as our center for care after looking at all the options,\u201d Kelly said. \u201cIt\u2019s a center of excellence, we loved Dr. Ney, and we really trust UCHealth. That speaks volumes.\u201d<\/p>\n

The waves will keep coming. Bruce Stahlman plans on surfing them \u2013 and on living how he wants to live until he doesn\u2019t.<\/p>\n","protected":false},"excerpt":{"rendered":"

Bruce Stahlman and wife Kelly had rightly hoped that their decades-long immersion in the U.S. health care system might end with the lives of their twin sons in 2014 and 2015. Mark and Eric had been born 12 weeks premature in 1992, and long neonatal intensive care unit stays presaged two decades of frequent hospitalizations. 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