{"id":70231,"date":"2023-06-07T12:31:54","date_gmt":"2023-06-07T18:31:54","guid":{"rendered":"https:\/\/www.uchealth.org\/today\/?p=70231"},"modified":"2023-06-21T10:40:34","modified_gmt":"2023-06-21T16:40:34","slug":"end-stage-liver-disease-and-then-one-illness-after-another","status":"publish","type":"post","link":"https:\/\/www.uchealth.org\/today\/end-stage-liver-disease-and-then-one-illness-after-another\/","title":{"rendered":"He’s battled one illness after another, but keeps his spirits revved for the fights"},"content":{"rendered":"
<\/div>
\"Daniel
Daniel Schwartzkopf with his great-granddaughter. Photo courtesy of Daniel Schwartzkopf.<\/figcaption><\/figure>\n

When Daniel Schwartzkopf was being wheeled into surgery for his liver transplant 15 years ago, the drag car racing owner-driver tossed out one of his signature lines as he fist-bumped his donor:<\/p>\n

\u201cSee you at the finish line.\u201d<\/p>\n

Those words were particularly meaningful since the man on the other side of the bump was his then-33-year-old son, Jamie.<\/p>\n

\u201cMy son donated 65% of his liver to me, and because of that, I like to joke that I\u2019m a lot younger than people think,\u201d he said and laughed, before adding. \u201cBut he saved my life \u2013 he\u2019s my son, my buddy and my hero.\u201d<\/p>\n

Dan and his son both made it to the finish line in that race in 2008. In fact, his son\u2019s liver would grow back to its original size within three months. But his father would face many more health scares and chronic medical battles that would test his competitive spirit and the limits of what his body could physically endure in the years that followed.<\/p>\n

The transplant was not the end of Dan\u2019s quest toward a better quality of life for himself, but just the beginning of one that would entail 83 additional surgeries contributing to a medical file that runs about 30,000 pages. Through it all, he has maintained his faith, his humor and his appreciation for his family, friends, and the staff who have treated him since 2005 at UCHealth<\/a> and CU Medicine<\/a> at the Anschutz Medical Campus.<\/p>\n

\"Daniel
Daniel Schwartzkopf has faced multiple medical battles, including end-stage liver disease and non-Hodgkin’s lymphoma. He’s relied on his faith and family to keep his spirits high. Here, he is pictured with his daughter and son. Photo courtesy Daniel Schwartzkopf.<\/figcaption><\/figure>\n

\u201cI\u2019ve had more needles stuck in me than a porcupine has needles sticking out of it,\u201d said the 68-year-old Torrington, Wyoming resident. \u201cAnd I joke that I\u2019ve trained most of the doctors at the hospital during the past 18 years. But really, I\u2019ve been so blessed. I trust them and I wouldn\u2019t want to be treated anywhere else.\u201d<\/p>\n

Small-town upbringing with five brothers<\/strong><\/h2>\n

Growing up with five brothers in Nebraska\u2019s panhandle 30 miles from his current Wyoming home, Dan\u2019s family didn\u2019t have a lot of money, and he remembers wearing hand-me-down clothes and getting into frequent scrapes with other boys.<\/p>\n

\u201cI was raised a tough guy, and from kindergarten on up, was fighting. If I wasn\u2019t racing cars, I was fighting someone,\u201d he said.<\/p>\n

He and his brothers loved to buy old cars, fix them and race them down country roads \u2013 a passion that stuck with him throughout his life as he became a race car driver and team owner touring the country promoting the use of ethanol, a fuel made from corn and other plant materials. The ethanol industry combined farming, agriculture and cars \u2013 three ingredients that have always fueled his interest.<\/p>\n

But before that, he was a teenager trying to find his way.<\/p>\n

After high school, he gave up a scholarship to play college football as family obligations, and the birth of his daughter meant providing for her and a son who was followed a year later. He joined the U.S. Navy from 1974 to 1982, an experience he loved \u2026 except for the part when a tattoo he got at a naval shipyard in Bremerton, Washington, in 1976 set off an unfortunate chain of events that haunt him to this day. He suspects that innocent rite of passage was responsible for his hepatitis C diagnosis nearly 30 years later. Hepatitis C<\/a> is a viral infection that causes liver inflammation and can lead to serious liver damage<\/a>.<\/p>\n

\"Daniel
Daniel Schwartzkopf<\/figcaption><\/figure>\n

It caught up with him at a routine office visit in 2005 when one thing led to another, and Dan found himself with a diagnosis of end-stage liver disease.<\/p>\n

\u201cI thought I was pretty much done health wise,\u201d he recalled. \u201cMy wife and I searched the internet for where I should get care, and we saw that UCHealth was a leader in liver transplants. So that\u2019s where we headed.\u201d<\/p>\n

End-stage liver disease = frequent commuter from Wyoming to Denver<\/strong><\/h2>\n

That began his relationship with UCHealth, as he and Diane, his wife of 32 years, commenced the three-hour, 183-mile commute from Torrington to the Anschutz campus, a trek he would make scores of times over the next two decades to see dozens of physicians from many departments.<\/p>\n

From 2005-2008, he was treated with three different chemotherapy drugs to try and cure his disease, but nothing worked, as doctors discovered he had genotype 3, which accounts for about a quarter of all hepatitis C cases and is more difficult to treat than other strains. As his conditions worsened, a transplant was necessary, and doctors found a suitable donor match in his son.<\/p>\n

\"Daniel
Daniel Schwartzkopf with his son, Jamie, on the day of liver transplant surgery. Daniel fist-bumped his son before the operation. Photo courtesy Daniel Schwartzkopf.<\/figcaption><\/figure>\n

\u201cIt\u2019s a very hard thing to ask someone in your family if they will give up part of their liver for you,\u201d he said.<\/p>\n

Dan went from 250 pounds to 200 overnight after the transplant with the fluid retention he lost. But he wasn\u2019t out of the woods by any stretch. He went into cardiac arrest a few days later, and while doctors worked on saving his life, he said he had an out-of-body experience where he momentarily died, but \u201cGod was with me; he brought me back.\u201d<\/p>\n

As his daughter Danielle wrote in a newspaper essay about her father following the transplant: \u201cThe illness that seeks out his life has taught us new ways to experience life with our father.\u201d<\/p>\n

Despite his new liver, he continued to fight hepatitis C with various experimental drugs, with a cure finally coming in the spring of 2016. But his victory would be short-lived. In the fall of that same year, he was diagnosed with stage IV non-Hodgkin\u2019s lymphoma<\/a> that had metastasized and spread throughout his body, including into his lungs and liver.<\/p>\n

\"A
A cap signed by friends and family. Photo courtesy of Daniel Schwartzkopf.<\/figcaption><\/figure>\n

He would return to the Anschutz campus and endure 120 hours of nonstop chemotherapy, consisting of seven different drugs, every 16 days for six months. But he didn\u2019t go through the ordeal alone. When he arrived at the hospital, many members of his family, including grandchildren and great-grandchildren, showed up to wish him well. They each signed a cap that he promised to wear when he was cancer free.<\/p>\n

And several months later in the spring of 2017, Dan donned the cap, rang the bell that signified the end of his treatment and pointed to the exit sign on his way out as he left a cancer-free man.<\/p>\n

But while Dan might have been done with hospital stays, he still had more health battles ahead. Years of medications to cure the diseases he\u2019d fought had damaged his heart, and in the fall 2017, he had open heart surgery, which included a double bypass. His health care team came to realize that his issues never were textbook cases and seemed to go from bad to worse very quickly.<\/p>\n

\u201cHe\u2019s dealing with so many things on so many different fronts, all serious and potentially life-threatening, and he has faced a tremendous amount of medical adversity,\u201d said Dr. David Kao,<\/a> UCHealth cardiologist. \u201cBut he carries on because of who he is as a person and his determination. He\u2019s a very positive, determined guy. He is aware of the good and the bad happening to him, but he\u2019s found a way to build trust with the people taking care of him.\u201d<\/p>\n

\"\"
Dr. David Kao<\/figcaption><\/figure>\n

Many battles on many fronts<\/strong><\/h2>\n

During the past few years, Dan has faced blood clots, a bleeding disorder, an E. coli infection, a pulmonary embolism, two knee replacements and 10 skin cancer surgeries, all while having to follow COVID-19 protocol during the pandemic. His stage IV liver disease has returned, and he must contend with high blood pressure, diabetes, blood flow issues, and living with lungs operating at 50% capacity and a heart, at 75% capacity. He does his best to keep these chronic issues at bay with diet, exercise and a healthy lifestyle.<\/p>\n

\u201cIt\u2019s not done with me yet, but I\u2019m feeling good,\u201d he said. \u201cEven though everything has involved so much time, and I\u2019m still fighting so much of it, right now, I\u2019m as good as I\u2019ve been in a long time.\u201d<\/p>\n

After spending much of his adult life in the ethanol industry and making international racing friends, he has supporters all over the world who have cheered him from afar during his medical travails as they once did from the stands. He is proud of his role in promoting ethanol as a motorsports fuel and being the first producer of race ethanol for the Indy Racing League.<\/p>\n

Away from the track, Dan looks forward to a planned family cruise and spends as much time as he can with his loved ones, many of who live near his home or in Colorado.<\/p>\n

\u201cEven in dark and hard times, he has the ability to find positivity and faith in his family and keep going,\u201d said Meg O\u2019Meara, transplant hepatology nurse practitioner. \u201cHe\u2019s one of the most resilient patients I have, but also open to talking about his feelings. He cares about the people who care about him. He\u2019s a special person.\u201d<\/p>\n

His medical care team point to Dan as an example of a patient with a complex medical history who has benefited from multiple teams communicating well to provide exemplary healthcare.<\/p>\n

And Dan couldn\u2019t agree more.<\/p>\n

\u201cHave I got a positive attitude about life? You bet. I have great doctors, great nurses and other staff, and I have a great relationship with them. I\u2019m their patient, but I\u2019m also their friend.\u201d<\/p>\n

He also has his strong faith and the love of family and friends that keep driving him forward.<\/p>\n

\u201cLife\u2019s tough. You can call these things I\u2019ve faced stumbling blocks, or you can call them dead ends. I call them stumbling blocks, and at 6\u20193\u201d, I can step over them.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"

When Daniel Schwartzkopf was being wheeled into surgery for his liver transplant 15 years ago, the drag car racing owner-driver tossed out one of his signature lines as he fist-bumped his donor: \u201cSee you at the finish line.\u201d Those words were particularly meaningful since the man on the other side of the bump was his […]<\/p>\n","protected":false},"author":2357,"featured_media":70378,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[5],"tags":[28,3512,3230,2773,9185],"class_list":["post-70231","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-innovative-care","tag-cancer-care-oncology","tag-heart-and-vascular-care-cardiovascular","tag-liver-transplants","tag-living-liver-donation","tag-non-hodgkins-lymphoma"],"acf":[],"yoast_head":"\nBattling one illness after another, including end-stage liver disease - UCHealth Today<\/title>\n<meta name=\"description\" content=\"Daniel's son, Jamie, donated part of his liver to his father, who had end-stage liver disease. 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